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WILLIE AND BAILEY
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20 THINGS THAT YOU CAN DO TO HELP WITH FIBRO FLARES

20 THINGS THAT YOU CAN DO TO HELP WITH FIBRO FLARES

 

 

 

20 THINGS THAT YOU CAN DO TO HELP WITH FIBRO FLARES
20 THINGS THAT YOU CAN DO TO HELP WITH FIBRO FLARES

Fibro/Chronic Illness Flares are devastating to those of us who have to go through them.  Complete agony and no way to ease it without doping yourself into oblivion.

For those who don’t know, Fibromyalgia is a disease that hypes up your ability to feel pain and then causes every inch of your body to feel pain at various times or at the same time.  It moves around your body so that you can never be sure where you are going to hurt next.

Fibromyalgia Flares means that every nerve ending in your body all at the same time goes into agony and it can last for days, weeks, months, and even years.  I have been in Fibro flare for over four years now and it is debilitating in the extreme.   There are days where it can take me a couple of hours just to get out of bed.  The part that really gets to me is that the longer you feel the pain and fatigue the worse it seems to get, every single day feels just that little bit worse than the day before, and that’s if it lasts for days or years.  Weather and temperature are a big factor in the way we feel pain, like everyone else we enjoy the sunshine although it can cause the fatigue to increase exponentially.  The rain, cold and snow can increase the pain to levels that you would not believe.

My son asked me to describe the pain one day and I said to him “It feels like I am being burnt alive, beaten with a baseball bat, and stabbed over every inch of my body all at the same time.”  He was shocked, because I still get out of bed every day, make dinner almost every night and can laugh and smile over the dinnertime chat.  Although, by after dinner, I can barely drag myself upstairs to go to bed.

     20 STRATEGIES THAT HELP ME GET THROUGH THE FLARE 

He asked me how I did it and I said that I have developed strategies over time that help me function.  Here are my top 20 go to’s for getting through the days:

  1. Stop Fighting it.  Don’t waste what little energy you have trying to fight through it.
  2. Stop focusing on the things that are not getting done and accept that they will be there when you can get to them.  Worry and guilt do nothing to help so let them go.
  3. If like me you have a journal, go back through it and have a look at the good memories you have made, if you don’t journal,  just cast back in your mind for a time that was a sheer joy and keep it close, it seems to ease things a little.
  4. Remember the movie ‘White Christmas”?  In that movie there is a part where Rosemary Clooney is having a hard time getting to sleep and Bing Crosby sings a song to her, the first couple of lines go like this:  “If you’re worried and you can’t sleep, just count your blessings instead of sheep, and you’ll fall asleep counting your blessings.”  Count your blessings, think about all the good things in your life.

    WHEN IN FLARE, JUST FOCUS ON YOU

  5. Your needs will have to come first right now, so stop worrying about everyone else, even though we don’t want to believe it, we are not indispensable.  The family will muddle through even if we cannot be hands on. And the more you focus on your needs, perhaps the flare will ease up faster.
  6. You cannot do any extra anything if you want to recover faster.  Do not allow yourself to have extra pressure put upon you, by yourself or anyone else.  JUST SAY NO.
  7. Sleep and more sleep is the best thing you can do for yourself, it allows your body to recover faster and the flare seems to ease up the more you get.

    20 THINGS THAT YOU CAN DO TO HELP WITH FIBRO FLARES 2
    20 THINGS THAT YOU CAN DO TO HELP WITH FIBRO FLARES 2

    WHILE IN FLARE, TRY TO KEEP YOUR MIND OCCUPIED

  8. Play mind games, read books, play Sudoku, binge watch a TV show, anything to get your mind off the pain and on to something else.  If you knit, or crochet focus entirely on that, if you colour or paint, anything to get your mind away from being overwhelmed by the pain.
  9. Your body is your best tool, it will tell you if you are able to take action on something, or if you have to rest.  The flare can be eased up by moving at a reduced rate and taking it very slowly when you do move.
  10. Make sure you take your meds as instructed, don’t be overzealous and start taking more than you should.
  11. Try out different types of healing, The medicine we know is all about the drugs they can give you, but there are other forms of medicine out there. Try acupuncture, massage therapy, or any other type of physical help that is offered.  Do not try pain relief in the form of a substance to take until you have talked to your doctor, what you get could conflict with current medications you are on. Be wise.
  12. Hydrate, hydrate, hydrate, yes, you may have to pee more but water can help with headaches, fatigue, and a host of other things in your body.  It also allows your muscles and joints to receive more fluid which can help ease the pain a little.

    MORE IDEAS TO HELP EASE YOU THROUGH A FLARE

  13.  Talk to someone about the pain, let it out.  If possible get with a support group in your community, if not then find a support group or someone online that you can talk to.  Talking helps stave off depression and anxiety, which are likely outcomes of flares, particularly those that last awhile.
  14. Try going Vegan for a few days (longer if you can), but cut back on the red meat protein and increase your vegetable and fruit intake.  From what I have heard if you can become a Vegan, it reduces not only how bad the flare can be, but how often flares occur.
  15. Simple yoga moves and stretches along with meditation can help reduce the feeling of pain. I’ve been told by a friend that hers is reduced by at least half after she does some simple stretches and meditates, if it can reduce it at all I’d say great, but by half, I’d be over the moon.
  16. Walking very slowly can help, take a turn around the yard or the block if you can manage it.  Any kind of gentle, minimal exercise can help with the pain.  I walk around my complex very slowly and I find that helps with the (what I call) lightning strikes, that’s the pain that shoots down your legs, or arms, or your whole body and feels like an electric current running right through you.

    20 THINGS THAT YOU CAN DO TO HELP WITH FIBRO FLARES 3
    20 THINGS THAT YOU CAN DO TO HELP WITH FIBRO FLARES 3
  17. THE LAST OF THE THINGS I TRY FOR MY FLARE

  18.  Some people swear by marijuana, but I found that it didn’t do much for me.  But then, I am in flare all the time, maybe it would work for some who has bouts of flare and then times where they are not in flare.  Who knows, about the only thing it did for me is it made me sleepy, which in a way was a good thing as I did sleep for a couple of hours afterwards.  Maybe I might try again but just before bed, see if I could actually get more than an hour at a time.
  19. Warm, hot baths with Epsom salts and Lavender oil, it makes stress melt away and helps the muscles and joints relax a little.
  20.  TENS stimulation has helped some people, but in other cases, it has made the pain feel worse (my case).  I just saw a commercial this morning about a portable tens unit from Aleve.  I have been thinking about it since this morning and I might give it another go to see if the first time was me just expecting the worst.
  21. Try to remove as much STRESS as you can from your life.  I know we all like a bit of drama now and then, but while in flare, try to avoid it.

         MY PERSONAL OPINION ON FLARES AND GETTING WORSE

Doctors do not believe that Fibromyalgia progresses or becomes more severe over time.  I personally, do not subscribe to that theory, as things that I could do last year are becoming harder and harder to do.

I don’t know if the progression is due to the illness itself or to the pain that just becomes more debilitating as time goes on.

Pain levels just seem to increase, my used to be 10s have now become 5s because the 10s now are an order of magnitude higher than they were.  Maybe just my ability to cope with pain has reduced markedly.

I did here somewhere, (can’t remember where), that pain is accumulative, the more you feel, the more intense it gets, or as I heard it the more you feel, the more you feel.

This post is mostly for newbies to chronic illness so that they will have an idea of what to do when they get to the flare stage.  The rest of us, who have had flares for a long time, all find ways to help with handling the pain, it is different for each person.  If some of the above ideas are not in your repertoire then give them a shot, it can only help or stay the same.  Otherwise, RISE WARRIOR RISE and do the best you can.

20 THINGS THAT YOU CAN DO TO HELP WITH FIBRO FLARES 4
20 THINGS THAT YOU CAN DO TO HELP WITH FIBRO FLARES 4

 

THINGS I LOVE, USE, OR MAKE

Sort of in keeping with the theme of the post above, I found a website a couple of weeks ago, after I had already written the above post, that I love.  It’s called  DO MORE BE MORE – Quality of Life Fitness.  I found it through a Pinterest pin and I have been reading at least one of her posts every day.

They are all about helping with Chronic Illness through nutrition, stress relief, and exercise.

WAIT! Before you run screaming from the room or, in our cases hobbling from the room, at the thought of exercising while you are in so much pain.  I want you to check out the site first, the author (named Gabby) understands us and how restricted we are, her Mum has suffered for over 40 years with Fibromyalgia.

She has exercises that can be done in bed, as well as an exercise routine, that is for those of us with Fibro that you can get for free just by signing up to her site.  I think the plan would work for most people with Chronic Illness, except those that have problems with balance, then I would do the bed routine.

I am what they call obese, I am over 100 lbs heavier than I should be thanks to this disease.  I have tried out just about every chair exercise, low aerobic exercise, and just plain exercise on YouTube, looking for something that I could stick with that would help me lose weight, but of course, I could not keep up with or even understand some of them (because of Fibro fog) to save my life.

So, I have stuck with just doing some yoga stretches to stay as flexible as possible, and doing the stairs in my house as needed (I have three flights between my bedroom and my office) to at least keep me healthy.

Needless to say, neither the yoga or the stairs have done anything to help with my weight.  I eat properly if maybe a bit too much, (and yes, I’m working on that as well, remember last week when I told you that I went back to Weight Watchers) as I cook all our meals from scratch.

Anyway, to get back to the topic, the site is for people like us, who cannot participate in regular exercise classes. The workout that I got by signing up, I tried for the first time yesterday, and while it was hard, even a two-year-old could get through faster than I did, I didn’t feel like I had to push myself beyond my tolerance level.

The plan even has a disclaimer that she is not a medical practitioner, so we should check with our Doctor before we start this, but I know my doctor would be overjoyed to know that I was trying something new.  Gabby is a Fitness Trainer and a Nutrition Coach, she doesn’t claim to be anything else, except someone who understands how we feel.

I love her site and will be following along for sure; if you want to give it a look you can find it at:

https://domorebemore.net

Check it out, I am sure that you will be as happy with it as I was.

 

QUOTE OF THE WEEK 

“YOU ONLY FAIL WHEN YOU STOP TRYING”

I have no idea who originally said this but I know it has been around for years, so, I am going to keep trying and with the help of the site above that I was just writing about, I hope that this time I will not be failing.

My son is getting married this year in November, it sure would be nice, if I didn’t look like the Pillsbury Dough Boy from Ghostbusters for the wedding.  And in case, you think that my weight is a problem for me, that is because it is.

I have all the confidence in the world in myself as a Mum, Wife, Writer, and even sometimes funny person (yeah, I know, don’t snort)  but my weight bothers me, not just from an aesthetics point of view, but from a health point of view.

I don’t think I know any person that has ever said to me “I’m just right, I am perfect.”  I don’t think I ever will hear that, because none of us is just right, we are all just this side of perfect.

I mean that sincerely, I think we are all just a hair’s breadth away from being perfect and that is because only God is perfect, and the rest of us, though made in his image, just don’t quite measure up, and to be honest, I don’t think I’d want to.

 

I DON’T THINK I’M GOING TO WRITE A ‘FAMILY LIFE’ POST THIS WEEK, AS I HAVE BEEN A LITTLE LONG WINDED IN OTHER AREAS.  SO INSTEAD HERE IS YOUR:

 

RECIPE OF THE WEEK

CHEESY MUSHROOM CHICKEN WITH PINEAPPLE GINGER RICE AND SALAD

Click the link below to get the recipe

https://barbsoutlook.com/?post_type=recipe&p=7456&preview=true

CHEESY MUSHROOM CHICKEN WITH PINEAPPLE GINGER RICE
CHEESY MUSHROOM CHICKEN WITH PINEAPPLE GINGER RICE AND SALAD

 

 

 

 

 

 

 

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